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Genetics Education Related Links

Centers for Disease Control & Prevention (CDC), National Office of Public Health Genomics
The National Office of Public Health Genomics is the office within the CDC that promotes the integration of genomics into public health research, policy, and practice in order to improve the lives and health of all people.

Genes in Life was created by Genetic Alliance organization and provides accessible information on genetics and health with a focus on genetic services and family health history. Genes in Life is an educational resource for individuals, families, communities, and healthcare providers.

Gene Tests, Gene Clinics and Gene Reviews
This genetic testing resource, funded by the National Institutes of Health, includes: A genetics laboratory directory, a genetics clinic directory, an introduction to genetic counseling and testing concepts (in About Genetic Services), and a PowerPoint slideshow presentation for genetics professionals (in Teaching Tools). This site also provides a clinical information resource relating genetic testing to the diagnosis, management, and genetic counseling of individuals and families with specific inherited disorders.

Genetic Alliance
The Genetic Alliance is an organization that aims to bring together diverse stakeholders to create novel partnerships in advocacy; integrate individual, family, and community perspectives to improve health systems; and revolutionize access to information to enable translation of research into services and individualized decision making.

Genetic Services Policy Project
The Genetic Services Policy Project (GSPP) was funded by the Health Resources and Services Administration. The project team for this four-year partnership between HRSA, DOH Genetic Services Section, and the University of Washington collected information and developed resources about genetic services in the United States. The GSPP is no longer active, but materials are still available on their website.

Health Resources & Services Administration, Maternal and Child Health Bureau (MCHB)
The Genetic Services Branch of the MCHB works to facilitate the early identification of individuals with genetic conditions and integrate them into systems of service and care that are accessible, available, affordable, acceptable, population and community-based, culturally appropriate and family-centered.

March of Dimes, Washington State Chapter
The March of Dimes Birth Defects Foundation works to improve the health of babies by preventing birth defects, premature birth, and infant mortality. They do this by funding programs of community services, advocacy, research, and education.

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National Institutes of Health, National Human Genome Research Institute
The National Human Genome Research Institute heads the Human Genome Project. This website provides information and resources related to the Human Genome Project.

National Newborn Screening & Genetics Resource Center
The National Newborn Screening and Genetics Resource Center provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.

National Organization for Rare Disorders
The National Organization for Rare Disorders is a unique group of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.

National Coalition for Health Professionals Education in Genetics (NCHPEG)
The National Coalition for Health Professionals Education in Genetics is a group of organizations committed to a national effort to promote health professional education and access to information about advances in human genetics.

Northwest Association for Biomedical Research
The Northwest Association for Biomedical Research is a non-profit educational organization established in 1988, to promote the public understanding of the implications and applications of biomedical research.

Office of Newborn Screening
The Washington State Department of Health's Office of Newborn Screening tests the infants born in Washington State for certain treatable disorders that may not otherwise be detected before developmental disability or death occurs. Infants with these disorders typically appear normal at birth. The testing and follow-up services of the office allow diagnosis before significant, irreversible damage occurs. These children can then be medically treated and, with long-term management, develop normally.

Western States Genetic Services Collaborative
The Western States Genetic Services Collaborative is a federally funded multi-state project that seeks to coordinate and increase access to genetic services among our states and territory. The participating states and territory are: Alaska, California, Guam, Hawaii, Idaho, Oregon and Washington.

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