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Special Considerations for Low Birthweight and Sick Babies

 

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Amino Acid Disorders | Fatty Acid Disorders | Organic Acid Disorders | Other Disorders |
Additional Testing | General | Other States

What should I know about these links?

The following links are provided as supplemental information. The Newborn Screening program encourages all patients to discuss any concerns they have regarding newborn screening results with their health care provider or with follow-up staff at the Newborn Screening program.   

Amino Acid Disorders
Argininosuccinic Acidemia (ASA)
Genetics Home Reference Comprehensive ASA Information
Genetics Home Reference - Family Support Sites ASA Support Sites for Families
STAR-G General ASA Information
Citrullinemia (CIT)
Genetics Home Reference Comprehensive CIT Information
Genetics Home Reference - Family Support Sites CIT Support Sites for Families
STAR-G General CIT Information
Homocystinuria (HCY)
National Organization for Rare Disorders General Information on HCY
SaveBabies.org General Information on HCY
Maple Syrup Urine Disease (MSUD)
National Organization for Rare Disorders General Information on MSUD
MSUD Family Support Group Family Support Organization
SaveBabies.org General Information on MSUD
Phenylketonuria (PKU)
Children's PKU Network PKU Support Organization
March of Dimes March of Dimes
National PKU News News and Information about PKU
University of Washington PKU Clinic Resources for Families and Professionals
Tyrosinemia Type I (TYR-I)
Genetics Home Reference Comprehensive TYR-I Information
Genetics Home Reference - Family Support Sites TYR-I Support Sites for Families
STAR-G General TYR-I Information

Fatty Acid Disorders
Carnitine Uptake Deficiency (CUD)
Genetics Home Reference General Information on CUD
Genetics Home Reference - Family Support Sites CUD Support Sites for Families
STAR-G General CUD Information
Long-chain L-3-hydroxy Acyl-CoA Dehydrogenase (LCHAD) Deficiency
Genetics Home Reference General Information on LCHAD
Genetics Home Reference - Family Support Sites LCHAD Support Sites for Families
STAR-G General LCHAD Information
Medium-chain Acyl-CoA Dehydrogenase (MCAD) Deficiency
FODSupport.org General MCAD Information for Families
FODSupport.org MCAD Information for Clinicians
Pacific Northwest Regional Genetics Group - English MCAD Guide for Parents - English
Pacific Northwest Regional Genetics Group - Spanish MCAD Guide for Parents - Spanish
Trifunctional Protein (TFP) Deficiency
Genetics Home Reference General Information on TFP
Genetics Home Reference - Family Support Sites TFP Support Sites for Families
STAR-G General TFP Information
Very-long Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency
Genetics Home Reference General Information on VLCAD
Genetics Home Reference - Family Support Sites VLCAD Support Sites for Families
STAR-G General VLCAD Information

Organic Acid Disorders
3-hydroxy-3-methylglutaric aciduria (HMG)
Genetics Home Reference General Information on HMG
Genetics Home Reference - Family Support Sites HMG Support Sites for Families
STAR-G General HMG Information
Beta-ketothiolase Deficiency (BKT)
Genetics Home Reference General Information on BKT
Genetics Home Reference - Family Support Sites BKT Support Sites for Families
STAR-G General BKT Information
Pacific Northwest Regional Genetics Group - English BKT Parent Guide - English
Pacific Northwest Regional Genetics Group - Spanish BKT Parent Guide - Spanish
Glutaric Acidemia Type I (GA-I)
Genetics Home Reference General Information on GA-I
Genetics Home Reference - Family Support Sites GA-I Support Sites for Families
STAR-G General GA-I Information
Isovaleric Acidemia (IVA)
Genetics Home Reference General Information on IVA
Genetics Home Reference - Family Support Sites IVA Support Sites for Families
STAR-G General IVA Information
Pacific Northwest Regional Genetics Group - English IVA Parent Guide - English
Pacific Northwest Regional Genetics Group - Spanish IVA Parent Guide - Spanish
Methylmalonic Acidemias (CblA,B and MUT)
Genetics Home Reference General Information on Methylmalonic Acidemias
Genetics Home Reference - Family Support Sites Methylmalonic Acidemia Support Sites for Families
STAR-G General Methylmalonic Acidemia Information
Multiple Carboxylase Deficiency (MCD)
Genetics Home Reference General Information on MCD
Genetics Home Reference - Family Support Sites MCD Support Sites for Families
STAR-G General MCD Information
Propionic Acidemia (PROP)
Genetics Home Reference General Information on PROP
Genetics Home Reference - Family Support Sites PROP Support Sites for Families
STAR-G General PROP Information

Other Disorders
Biotinidase Deficiency (BIOT)
Biotinidase Deficiency Save Babies Through Screening Foundation
Biotinidase Deficiency Support Group Biotinidase Deficiency Family Support Group Website
Connecticut Children's Medical Center Biotinidase Deficiency Booklet For Families and Professionals
Gene Review Comprehensive Biotinidase Deficiency Page
Congenital Adrenal Hyperplasia (CAH)
CAH Support Group Australia Inc. General CAH Information
CARES Foundation General CAH Information
National Adrenal Diseases Foundation General CAH Information
The Magic Foundation General CAH Information
Congenital Hypothyroidism (CH)
The Magic Foundation General CH Information
UW Congenital Hypothyroidism Clinic University of Washington CH Follow-Up Clinic
Cystic Fibrosis (CF)
Cystic Fibrosis Foundation General CF Information
Medline Plus CF InformationWith Links to Other Sites
Galactosemia (GALT)
Parents of Galactosemic Children National Support Organization
Galactosemia Support Northwest Patient and Family Support Organization
OMIM Galactosemia Information General Information on Galactosemia
UW Adult Metabolic Transition Project General Information on Galactosemia
Hemoglobinopathies (Hb)
Comprehensive Sickle Cell Centers Comprehensive Sickle Cell Site
Cooley's Anemia Foundation Comprehensive Thalassemia Page
Mary Bridge Sickle Cell Program Mary Bridge Health Center in Tacoma
Odessa Brown Children's Clinic Sickle Cell Anemia Clinic in Seattle

Laboratories that Offer Testing for Additional Newborn Disorders
Institute of Metabolic Disease Baylor University Medical Center
PerkinElmer Genetics, Inc. Newborn Screening Laboratory (formerly Pediatrix Screening)
Biochemical Genetics Laboratory University of Colorado Health Sciences Center
Mayo Medical Laboratories Mayo Clinic - Offers expanded screening through hospitals, physicians and other health care providers ONLY.

General
American Public Health Association National Public Health Information
CHILD Profile Health Guide for Washington Babies
Centers for Disease Control and Prevention CDC Newborn Screening Page
Center on Human Development & Disability University of Washington Clinics
Children's Health and Safety Children's Health and Safety Information in Washington
Clinical and Laboratory Standards Institute Main Site for CLSI formerly NCCLS
Health Education Resource Exchange in Washington Health Education Clearinghouse
Health Resources and Services Administration HRSA Programs Page
Keeping Your Baby Safe Online Child Protection & Safety Guide from DSHS
National Institute of Child Health & Human Development Guide for Children's Overall Health
National  Library of Medicine General Health Information Library
National Newborn Screening & Genetics Resource Center Comprehensive Screening Page
Pacific Northwest Regional Genetics Group(PacNoRGG) Comprehensive Genetic Services 
Pregnancy Foresight Project Preconception & Prenatal Education
Save Babies Through Screening Parent Resource on Screening
Washington Birth Data DOH Center for Health Statistics 
Washington EHDDI Program Newborn Early Hearing Loss Detection, Diagnosis & Intervention Program
Washington Services for Infants DOH Maternal & Child Health 
Washington State Chapter of the March of Dimes March of Dimes - Washington State 
Washington State Local Health Departments Local Health Departments 
Washington State Public Health Association Public Health Information for WA 
WithinReach Health Guide for Washington Babies - Formerly Healthy Mothers, Healthy Babies

Other States
Alabama Alabama Newborn Screening Page
AlaskaAlaska MCFH Page
Arizona Arizona Newborn Screening Page
Arkansas Arkansas Personal Health Services
California California Newborn Screening Page
Colorado Colorado Newborn Screening Page
Connecticut Connecticut Department of Public Health Page
Delaware Delaware Newborn Screening Page
Florida Florida Newborn Screening Page
Georgia Georgia Newborn Screening Page
Hawaii Hawaii Newborn Screening Page
Idaho Idaho Childrens' Health Page 
Illinois Illinois Genetics & Newborn Screening Page
Indiana Indiana Newborn Screening Page
Iowa Iowa Center for Congenital and Inherited Disorders
Kansas Kansas Newborn Screening Page
Kentucky Kentucky Newborn Screening Page
Louisiana Louisiana Newborn Screening Page
Maine Maine Newborn Screening Page
Maryland Maryland Newborn Screening Page
Massachusetts Massachusetts Newborn Screening Information Page
Michigan Michigan Department of Community Health
Minnesota Minnesota Newborn Blood Spot Screening
Mississippi Mississippi Genetics Program
Missouri Missouri Newborn Screening Page
Montana Montana Newborn Screening Page
Nebraska Nebraska Newborn Screening Page
Nevada Nevada State Health Division Page
New Hampshire New Hampshire Newborn Screening Page
New Jersey New Jersey Newborn Biochemical Screening Page
New Mexico New Mexico Newborn Screening Page
New York New York's Newborn Screening Page
North Carolina North Carolina Newborn Screening Page
North Dakota North Dakota maternal & Child Health Page
Ohio Ohio Genetic Services Page
Oklahoma Oklahoma Newborn Screening Page
Oregon Oregon's Newborn Screening Page
Pennsylvania Pennsylvania Newborn Screening Contact
Rhode Island Rhode Island Newborn Screening Page
South Carolina South Carolina Newborn Screening Lab
South Dakota South Dakota Newborn Screening Page
Texas Texas Newborn Screening Page
Tennessee Tennessee Newborn Screening Page
Utah Utah Newborn Screening Page
Virginia Virginia Genetics Program Page
Vermont Vermont Newborn Screening Regulations Page
Washington You are here!
Washington D.C. Washington D.C. Maternal & Child Health
West Virginia West Virginia Newborn Screening Page
Wisconsin Wisconsin's Newborn Screening Page
Wyoming Wyoming Genetics & Metobolic Clinics  Page

Links to external resources are provided as a public service and do not imply endorsement by the Washington State Department of Health.

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Washington State Department of Health
Newborn Screening Program
1610 NE 150th Street NE
Shoreline, Washington, 98155

Last Update : 09/03/2008 12:47 PM
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Comments or questions regarding this web site? Send mail to Gary Resler.