Birth defect of the opening of the urethra, on the underside of the penis.

Adolescent Health Transition Project at the University of Washington

Serious underdevelopment of the brain and spinal cord that usually can not support life.

Answers for Special Kids toll free line in Washington (1-800-322-2588)

A developmental disability caused by a physical disorder of the brain appearing during the first three years of life that impacts the development of physical, social, and behavioral skills.

Behavior Risk Factor Surveillance Survey

Center for Children with Special Needs (at CHRMC)

Center for Disease Control and Prevention (Federal)

A condition occurring either prenatally, during birth, or shortly after birth in which the developing brain lacks for oxygen, and resulting in uncoordinated movements and muscle weakness.

Center on Human Development and Disability at the University of Washington

Child Health Intake Form

Children’s Hospital and Regional Medical Center in Seattle, Washington

Birth defect resulting in separation of the upper lip.

Community Integrated Service Systems

Birth defect or gap in the roof of the mouth resulting in an open passage within the nose.

Children with Special Health Care Needs

Disability Determination Services.  A State program which is part of DSHS, but which contracts with the Federal Social Security Administration.

Department of Health and Human Services (Federal)

Department of Health (State)

Birth defect involving extra chromosome that results in mental and physical disability.

Department of Social and Health Services (State)

Division of Vocational Rehabilitation (State)

Programs or services designed to meet the developmental needs of infants or toddlers (birth to three) and their families.

Foundation for Accountability

Family Educator Partnership Project

A pattern of physical and mental birth defects that are the direct result of a mother drinking alcohol while pregnant.

Birth defect in which the abdomen does not properly form a muscle wall and internal organs are exposed.

Refer to WithinReach

Individuals with Disabilities Act (Federal)

Infant Toddler Early Intervention Program (State)

Leadership Education in Neurodevelopmental Disabilities

Local health jurisdiction, usually a county health department.

Birth defect in which an arm or leg fails to fully develop.

Refer to HRSA

Mary Bridge Children’s Hospital in Tacoma, Washington

Maternal and Child Health (State)

Maternal and Child Health Bureau (Federal)

A federal health insurance program that provides payment for medical expenses for those who meet income limits.

Refers to a relationship between a family and a primary care provider and clinic staff, supported by other community and specialty providers involved in the child's care or services.

Neurodevelopmental Centers

Problems affecting the development of the central nervous system or brain resulting in delayed or unusual motor, speech, social, or learning deficits.

Birth defect resulting in a hernia or bulging of the navel (belly button).

Birth defects of the mouth or face.

Office of the Superintendent for Public Instruction (like a Department of Education in other states)

The part of the federal Individuals with Disabilities Act that authorizes grants to the states for early intervention services for infants and toddlers birth to three within each state's criteria for eligibility.

Questionnaire for Identifying Childhood Chronic Conditions – Revised

DHHS region of the US that includes California, Arizona, Nevada, and Hawaii

DHHS region of the US that includes Washington, Idaho, Oregon, and Alaska

Birth defect in which the spinal column remains open and the spinal column is exposed at birth.

Social Security Administration (Federal)

Supplemental Security Income (Federal)

The federal funding from the Social Security Act that supports public health services for women, infants, children, including those with special health care needs.

University of Washington

Vital Statistics Analysis Program

Special Supplemental Nutrition Program for Women, Infants, and Children in Washington.

WorkFirst is Washington State’s welfare reform program.